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Table 5 Selection of open codes referring to social influence, based on frequency

From: Co-constructing effective collective intelligence networks in rare diseases: a mixed method approach to identify the parameters that matter for patients, professionals and policy-makers, piloted in Cyprus

Social influence (frequency 129/1357 codes)

Directing to colleagues indicating hierarchies and status-quo; Too small of a number for a health professional to focus on/ develop expertise; Perceived interest or lack of interest from important others; Fiefdoms - Individual thinking/practice; Immediacy of information and momentum; Some patients don’t want to share about disease - Taboo

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172