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Table 4 Actions implemented by RESRIP at the paramedical, social and educational levels, at the request of the patient and/or the referring doctor, at the time of inclusion (n = 406)

From: Well-being in chronic pediatric inflammatory rheumatic diseases: the experience of a French healthcare network

 

Total (n = 406)

JIA (n = 256)

CTD (n = 68)

AIDs (n = 82)

Other (n = 55)

School accommodation

Educational actions

54 (13.3)

27 (13.2)

10 (14.7)

9 (11.1)

8 (15.4)

Test accommodation

30 (7.4)

14 (6.8)

5 (7.4)

8 (9.9)

3 (5.8)

Arrangement for sports activity

153 (37.7)

72 (35.1)

31 (45.6)

34 (42.0)

16 (30.8)

Health professionals

General practitioner

322 (79.3)

158 (77.1)

56 (82.4)

62 (76.5)

46 (88.5)

Pediatrician

77 (19.0)

53 (25.9)

9 (13.2)

6 (7.4)

9 (17.3)

Social assistant

47 (11.6)

14 (6.8)

15 (22.1)

9 (11.1)

9 (17.3)

Home care nurse

131 (32.3)

82 (40.0)

20 (29.4)

16 (19.8)

13 (25.0)

Supportive care

Psychological support

90 (22.2)

37 (18.1)

13 (19.1)

24 (29.6)

16 (30.8)

Dietetic monitoring

41 (10.1)

12 (5.8)

16 (23.5)

6 (7.41)

7 (13.5)

Orthopedic devices

27 (6.6)

19 (9.3)

2 (2.9)

2 (2.5)

4 (7.7)

Occupational therapy

30 (7.4)

18 (8.8)

4 (5.9)

2 (2.5)

6 (11.5)

Hypnotherapy

52 (12.8)

21 (10.2)

6 (8.8)

14 (17.3)

11 (21.1)

Physical therapy

239 (58.9)

161 (78.5)

40 (58.8)

20 (24.7)

18 (34.6)

  1. JIA juvenile idiopathic arthritis, CTD connective tissue disease, AIDs auto-inflammatory diseases