Table 2 Additional criteria for the patient and parent sample

Geographic data

Distance between home and centre:

0–5 km - between 5 and 20 km - between 20 and 50 km - over 50 km

Duration of travel (hours, minutes) from home to the centre (Hour, minutes):

Family characteristics

Language spoken in the family of the child or adult patient:

Marital status of the patient or parent responding to the survey:

Number of children living in the home:

Siblings with cystic fibrosis (number of children): …

Other medical conditions in the family (name the condition): ………….

Socio-professional characteristics

Employment status of the patient or parent responding to the survey:

- Salaried worker 

- no professional activity

- Self-employed 

- on disability benefits

- Student

- retired

Socio-professional category of the patient or parent responding to the survey:

- Farmer or farm operator 

intermediate profession

- Craftsman or trader 

- employee

- Executive or intellectual profession 

- worker

- Student

Education level of the patient or parent responding to the survey:

- No diploma 

- undergraduate degree

- French certificate of general education

- master's degree

- French vocational qualifications (CAP-BEP) 

- PhD level

- French general baccalaureate or professional baccalaureate

Specific criteria

- Activities with associations

- other: