Table 4 Included records on guidance for care practice for individuals with OI
| Â | Country | Organisation/ author | Population | Type | OI specific | Subject |
|---|---|---|---|---|---|---|
Antoniazzi, Mottes [47] | Italy | Expert HCPs | Mixed | Guidelines | Yes | Practical guidelines for the treatment of OI in Italy |
Bianchi, Leonard [241] | International | Taskforce of the Paediatric Position Development conference | Paediatric | Position statement | No | Review of the use of DEXA in children with chronic diseases |
Byers, Krakow [242] | USA | Expert HCPs | Mixed | Guidelines | Yes | Guidelines on laboratory testing, pre-natal testing, family history and clinical detection of OI at different ages |
Cianferotti and Brandi [243] | Italy | Italian Society for Osteoporosis, Mineral Metabolism and Bone Diseases | Mixed | Guidelinesa | No | Superseded by guidelines published in 2016 |
Galindo-Zavala, Bou-Torrent [244] | Spain | Expert HCPs | Paediatric | Consensus guidelines | No | Expert panel consensus recommendations for the prevention, diagnosis and treatment of secondary childhood osteoporosis |
Mueller, Engelbert [245] | International | Expert panel of 13th Conference on Osteogenesis Imperfecta | Paediatric | Consensus statement | Yes | 16 consensus statements on physical training for rehabilitation and improved motor function in children with OI |
Rossini, Adami [246] | Italy | Italian Society for Osteoporosis, Mineral Metabolism and Bone Diseases | Mixed | Guidelines | No | General guidelines for management and diagnosis for both primary and secondary osteoporosis and associated diseases |
Ruggiero, Dodson [247] | USA | American Association of Oral and Maxillofacial Surgeons | Mixed | Position statement | No | Strategies for the diagnosis, treatment, and management of bisphosphonate-related osteonecrosis of the jaw |
Shapiro and Germain-Lee [248] | USA | Expert HCPs | Mixed | Guidelines | Yes | Effective transition from paediatric to adult OI care |
Simm, Biggin [249] | Australia | APEG working group | Paediatric | Consensus guidelines | No | Consensus guidelines on the recommended use of bisphosphonates in children |
van Brussel, van der Net [250] | Netherlands | Expert HCPs | Mixed | Guidelines | No | Physical activity in children with OI |
van Dijk, Byers [251] | International | EMQN | Mixed | Consensus guidelines | Yes | Best practice consensus guidelines for the molecular and genetic diagnosis of OI |
White, White [252] | International | Delphi panel of expert HCPs | Mixed | Consensus guidelines | No | Multidisciplinary guidelines for diagnosis, evaluation, and treatment of patients with skeletal dysplasia with spinal pathology Guidelines for management and diagnosis for both primary and secondary osteoporosis |