Table 1 Sociodemographic and disease-related characteristics of the study sample
Characteristics | n | % |
|---|---|---|
Relation of caregiver to the child with RD | ||
Mother | 124 | 83.2 |
Father | 21 | 14.1 |
Foster mother | 1 | 0.7 |
Grandmother | 1 | 0.7 |
Brother | 2 | 1.3 |
Marital status of caregiver a | ||
Single/divorced/widowed | 21 | 15.8 |
Married/partnered | 112 | 84.2 |
Highest educational level of caregiver a | ||
Basic school qualification (usually 9 years of High School) | 5 | 3.8 |
Intermediate school qualification (10 years of High School) | 28 | 21.1 |
Higher education entrance qualification (12–13 years of High School) | 36 | 27.1 |
University degree or higher | 64 | 48.1 |
Treatment of at least one of the children with RD per family b | ||
Outpatient treatment in the last year | 133 | 89.3 |
Outpatient treatment in the last two weeks | 49 | 32.9 |
Inpatient treatment in the last year | 82 | 55.0 |
Inpatient treatment in the last two weeks | 8 | 5.4 |
Functional impairments of the children with RD c | ||
Physical/ motor function only | 20 | 12.0 |
Mental development only | 2 | 1.20 |
Social functioning only | 8 | 4.80 |
Physical/ motor function plus mental development | 8 | 4.80 |
Physical/ motor function plus social functioning | 19 | 11.4 |
Mental development plus social functioning | 13 | 7.80 |
Impairment in all three domains | 59 | 35.3 |