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Table 2 The CCE, average expenditure and drug cost per visit for 10 rare diseases in Sichuan Province in 2018

From: Rare disease curative care expenditure-financing scheme-health provider–beneficiary group analysis: an empirical study in Sichuan Province, China

Disease

Outpatients

Inpatients

Total

CCE $Million (%)

Average expenditure per visit ($)

Average drug cost per visit (%)

CCE $Millio (%)

Average expenditure per visit ($)

Average drug cost per visit (%)

CCE $Million (%)

Hemophilia

154.73 (35.34)

221.54

86.76

283.13 (64.66)

2112.22

45.35

437.86 (23.04)

YOPD

102.07 (34.35)

74.50

87.12

194.2 (65.55)

5141.82

6.57

296.27 (15.59)

SSc

144.35 (59.02)

88.78

70.03

100.22 (40.98)

1180.98

35.54

244.57 (12.87)

NMO

80.65 (34.92)

120.04

89.11

150.29 (65.08)

2104.93

30.65

230.94 (12.15)

AE

25.63 (14.47)

308.36

51.78

151.49 (85.53)

3766.57

33.14

177.12 (9.32)

IPF

6.67 (5.42)

82.97

77.38

116.28 (94.58)

2781.55

33.86

122.95 (6.47)

MS

16.75 (15.82)

52.02

64.76

89.15 (84.18)

1481.66

31.32

105.91 (5.57)

CS

4.06 (4.14)

82.96

0.01

93.99 (95.86)

10,491.82

5.15

98.05 (5.16)

MSA

27.86 (28.45)

110.31

86.82

70.06 (71.55)

1515.47

19.78

97.93 (5.15)

ALS

5.89 (6.65)

49.30

75.91

82.64 (93.35)

1601.52

16.21

88.53 (4.66)

Total

568.66 (29.93)

109.33

79.50

1331.45 (70.07)

2411.64

26.65

1900.11 (100.00)

  1. CCE curative care expenditure