Table 1 The general statistics of patients with 10 rare diseases in Sichuan Province in 2018 (n/%)
Disease | Total number of patients | Average age (\(\overline{x }\pm \) s) | Gender | Service function | ||
|---|---|---|---|---|---|---|
Male | Female | Outpatients | Inpatients | |||
SSc | 2534 (26.09) | 49.02 ± 15.26 | 565 (22.30) | 1969 (77.70) | 2180 (86.03) | 354 (13.97) |
YOPD | 1935 (19.92) | 42.83 ± 9.50 | 1030 (53.23) | 905 (46.77) | 1744 (90.13) | 191 (9.87) |
Hemophilia | 1504 (15.48) | 18.10 ± 17.03 | 1437 (95.55) | 67 (4.45) | 954 (63.43) | 550 (36.57) |
NMO | 1340 (13.79) | 46.32 ± 14.40 | 178 (13.28) | 1162 (86.72) | 1017 (75.90) | 323 (24.10) |
MS | 682 (7.02) | 41.35 ± 13.92 | 195 (28.59) | 487 (71.41) | 416 (61.00) | 266 (39.00) |
MSA | 571 (5.88) | 62.77 ± 9.34 | 311 (54.47) | 260 (45.53) | 397 (69.53) | 174 (30.47) |
ALS | 415 (4.27) | 57.27 ± 10.99 | 241 (58.07) | 174 (41.93) | 172 (41.45) | 243 (58.55) |
AE | 323 (3.33) | 33.47 ± 18.49 | 158 (48.92) | 165 (51.08) | 131 (40.56) | 192 (59.44) |
IPF | 280 (2.88) | 67.91 ± 10.31 | 186 (66.43) | 94 (33.57) | 103 (36.79) | 177 (63.21) |
CS | 130 (1.34) | 13.28 ± 10.28 | 57 (43.85) | 73 (56.15) | 74 (56.92) | 56 (43.08) |
Total | 9714 (100.00) | 42.80 ± 19.06 | 4358 (44.86) | 5356 (55.14) | 7188 (74.00) | 2526 (26.00) |