Table 1 Patient demographics (EHR data)
DDEB (n = 17) | RDEB (n = 85) | DEB (type unknown) (n = 45) | EB unspecified (n = 265) | |
|---|---|---|---|---|
Age, years | ||||
Mean (SD) | 25.6 (23.5) | 19.5 (14.8) | 46.8 (25.9) | 43.8 (25.4) |
Median (IQR) | 18 (13‒18) | 16 (8‒28) | 50 (21‒65) | 47 (20‒65) |
Age group, n (%) | ||||
0‒10 years | 4 (23.5) | 30 (35.3) | 4 (8.9) | 33 (12.5) |
11‒17 years | 4 (23.5) | 18 (21.2) | 5 (11.1) | 26 (9.8) |
≥ 18 years | 9 (52.9) | 37 (43.5) | 36 (80.0) | 206 (77.7) |
Female, n (%) | 10 (58.8) | 51 (60.0) | 29 (64.4) | 151 (57.0) |
Region, n (%) | ||||
Northeast | 7 (41.2) | 26 (30.6) | 7 (15.6) | 41 (15.5) |
Midwest | 9 (52.9) | 36 (42.4) | 25 (55.6) | 166 (62.6) |
South | 1 (5.9) | 17 (20.0) | 9 (20.0) | 38 (14.3) |
West | 0 (0.0) | 1 (1.2) | 4 (8.9) | 12 (4.5) |
Other | 0 (0.0) | 5 (5.9) | 0 (0.0) | 8 (3.0) |
Insurance type, n (%) | ||||
Commercial | 8 (47.1) | 24 (28.2) | 17 (37.8) | 123 (46.4) |
Medicare | 1 (5.9) | 6 (7.1) | 9 (20.0) | 49 (18.5) |
Medicaid | 2 (11.8) | 22 (25.9) | 5 (11.1) | 25 (9.4) |
Uninsured | 0 (0.0) | 2 (2.4) | 1 (2.2) | 6 (2.3) |
Other/unknown | 6 (35.3) | 17 (20.0) | 3 (6.7) | 18 (6.8) |
Combinations | 0 (0.0) | 14 (16.5) | 10 (22.2) | 44 (16.6) |