Table 2 Caregiver-reported life impacts from access burdens
Life impact | Number of mentions |
|---|---|
Caregiver burnout | 14 |
Advocating in the right ways | 14 |
Emotional toll | 9 |
Filing appeals | 8 |
Providing financial support | 7 |
Accessing treatments | 3 |
Awareness of resources | 3 |
Learning to care for child who is losing abilities | 2 |
Power of attorney confusion | 2 |