ERN CRANIO patient coverage of craniosynostosis in Europe

Table 3 Coverage of syndromic craniosynostosis

Country	Total no of new syndromic patients	Live births 2017	Generated prevalence	Range syndromic	Range total
Consistent with reported total craniosynostosis prevalence
The Netherlands	44	170,000	2.6	Higher	Higher
UK	111	755,000	1.5	In range	In range
Portugal	5	86,000	0.6	Lower	Lower
Germany	18	785,000	0.2	Lower	Lower
Inconsistent with reported total craniosynostosis prevalence
Sweden	14	115,000	1.2	In range	Higher
Finland	1	50,000	0.2	Lower	In range
Italy	17	458,000	0.4	Lower	In range
France	23	770,000	0.3	Lower	In range

Syndromic craniosynostosis figures for 2017 reported by ERN CRANIO member centres (per country). A prevalence figure is generated per 10,000 live births. Number of live births was retrieved from Eurostat. For four countries, there is inconsistency between ERN CRANIO’s patient coverage of new patients with ‘total’ and syndromic craniosynostosis, with less coverage of syndromic craniosynostosis

ISSN: 1750-1172