Table 2 Coverage of craniosynostosis. (A) Total 2017 craniosynostosis figures (per country) reported by ERN CRANIO member centres, not including successful new applicant data. (B) Total 2017 craniosynostosis figures reported by ERN CRANIO centres (per country), including successful new applicant data
From: ERN CRANIO patient coverage of craniosynostosis in Europe
Country | Number of centres | New patients | Live births 2017 | Generated prevalence |
|---|---|---|---|---|
(A) Generated prevalence of total craniosynostosis | ||||
Higher than expected prevalence (> 7.2 per 10,000 live births) | ↑ | |||
The Netherlands | 2 | 193 | 170,000 | 11.4 |
Sweden | 2 | 111 | 115,000 | 9.7 |
In expected prevalence range (4.4–7.2 per 10,000 live births) | = | |||
Finland | 1 | 25 | 50,000 | 5.0 |
UK | 4 | 489 | 755,000 | 6.5 |
Under expected prevalence range (< 4.4 per 10,000 live births) | ↓ | |||
Portugal | 1 | 30 | 86,000 | 3.5 |
France* | 1 | 303 | 770,000 | 3.9 |
Italy | 4 | 142 | 458,000 | 3.1 |
Germany | 1 | 158 | 785,000 | 2.0 |
Spain | 2 | 118 | 391,000 | 3.0 |
(B) Generated prevalence of total craniosynostosis including new applicant data | ||||
In expected prevalence range (4.4–7.2 per 10,000 live births) | = | |||
France* | 2 | 375 | 770,000 | 4.9 |
Spain | 3 | 196 | 391,000 | 5.0 |
Italy | 5 | 225 | 458,000 | 4.9 |
Under expected prevalence range (< 4.4 per 10,000 live births) | ↓ | |||
Germany | 2 | 185 | 785,000 | 2.4 |