Table 1 Drug development and approval process awareness among CDG professionals and families
| Â | Professionals | Families | |
|---|---|---|---|
Are you familiar with the clinical drug development and approval process? (n = 46) | How familiar are you with the clinical drug development process? (n = 82) | How familiar do you think you are with the drug approval process? (n = 82) | |
Very familiar | 10.9% | 4.9% | 6.1% |
Familiar | 39.1% | 9.8% | 9.8% |
Slightly familiar | 45.7% | 39.02% | 42.68% |
Not familiar | 4.35% | 35.4% | 39.0% |
I don’t know | 0% | 2.4% | 0% |
I have never heard about | NA | 8.5% | 2.4% |