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Table 1 Drug development and approval process awareness among CDG professionals and families

From: Stakeholders’ views on drug development: the congenital disorders of glycosylation community perspective

  Professionals Families
Are you familiar with the clinical drug development and approval process?
(n = 46)
How familiar are you with the clinical drug development process?
(n = 82)
How familiar do you think you are with the drug approval process?
(n = 82)
Very familiar 10.9% 4.9% 6.1%
Familiar 39.1% 9.8% 9.8%
Slightly familiar 45.7% 39.02% 42.68%
Not familiar 4.35% 35.4% 39.0%
I don’t know 0% 2.4% 0%
I have never heard about NA 8.5% 2.4%