Table 5 Students' self-assessment of their knowledge about RD
Items | Medical s | Nursing s | Other s | P value |
|---|---|---|---|---|
N (%) | ||||
Do RD constitute a serious public health issues? | Â | Â | Â | Â |
 Absolutely yes | 820 (30.01) | 668 (28.57) | 516 (29.18) | 0.15 |
 Yes | 850 (31.11) | 700 (29.9) | 570 (32.23) |  |
 No | 281 (10.2) | 239 (10.2) | 198 (11.19) |  |
 Definitely no | 66 (2.41) | 51 (2.18) | 47 (2.65) |  |
 I do not now | 715 (26.17) | 680 (29.08) | 437 (24.71) |  |
Which physicians should be uniquely trained in RD? | Â | Â | Â | Â |
 Family physician | 1356 (49.6) | 1133 (48.5) | 881 (49.8) | – |
 Pediatrician | 932 (34.1) | 842 (36) | 602 (34) |  |
 Neurologist | 497 (18.2) | 411 (17.6) | 329 (18.6) |  |
 Geneticist | 1755 (64.2) | 1547 (66.2) | 1116 (63.1) |  |
 Psychiatrist | 453 (16.6) | 402 (17.2) | 310 (17.5) |  |
 Immunologist | 739 (27) | 629 (26.9) | 508 (28.7) |  |
Have you had any classes about rare disease during your studies? | Â | Â | Â | Â |
 Yes | 1879 (68.8) | 1629 (69.7) | 1238 (70) | 0.63 |
 No | 594 (21.7) | 491 (21) | 383 (21.7) |  |
 I do not know | 259 (9.5) | 218 (9.3) | 147 (8.3) |  |
How would you rate your knowledge about rare diseases? | Â | Â | Â | Â |
 Very good | 51 (1.9) | 45 (1.9) | 29 (1.6) | 0.91 |
 Fair enough | 366 (13.4) | 279 (11.9) | 223 (12.6) |  |
 Insufficient | 1197 (43.8) | 1072 (45.9) | 791 (44.7) |  |
 Very poor | 1118 (40.9) | 942 (40.3) | 725 (71) |  |
Would you like to broaden your knowledge about rare diseases? | Â | Â | Â | Â |
 Yes | 2213 (81) | 1865 (79.8) | 1403 (79.4) | 0.44 |
 No | 300 (11) | 292 (12.5) | 231 (13.1) |  |
 I do not know | 219 (8) | 181 (7.7) | 134 (7.6) |  |
Do you think that there should be a mandatory course on rare diseases in medical curricula? | Â | Â | Â | Â |
 Definitely yes | 584 (21.4) | 528 (22.6) | 382 (21.6) | 0.60 |
 Rather yes | 1378 (50.4) | 1168 (50) | 898 (50.8) |  |
 Rather not | 423 (15.5) | 353 (15.1) | 258 (14.6) |  |
 Definitely not | 188 (6.9) | 166 (7.1) | 135 (7.6) |  |
 I do not know | 159 (5.8) | 123 (5.3) | 95 (5.4) |  |
Where do you get your knowledge about RD from? | Â | Â | Â | Â |
 Mandatory courses at the university | 663 (24.3) | 590 (25.2) | 462 (26.1) | – |
 Faculty courses at the university | 193 (7.1) | 135 (5.8) | 142 (8) |  |
 Scientific literature and research | 654 (23.9) | 533 (22.8) | 448 (25.3) |  |
 Scientific conferences, symposia | 313 (11.5) | 231 (9.9) | 180 (10.2) |  |
 Internet | 1517 (55.5) | 1332 (57) | 954 (54) |  |
 I do not search for such information | 546 (20) | 442 (18.9) | 344 (19.5) |  |
Do you feel prepared for caring over a patient with a rare disease? | Â | Â | Â | Â |
 Definitely yes | 164 (6) | 123 (5.3) | 91 (5.1) | 0.24 |
 Rather yes | 605 (22.1) | 508 (21.7) | 382 (21.6) |  |
 Rather not | 858 (31.4) | 710 (30.4) | 544 (30.8) |  |
 Definitely not | 814 (29.8) | 751 (32.1) | 552 (31.2) |  |
 I do not know | 291 (10.7) | 246 (10.5) | 199 (11.3) |  |