Table 4 Students' knowledge about healthcare system for RD patients
Items | Medicals | Nursings | Others | P value |
|---|---|---|---|---|
N (%) | ||||
11. What percentage of rare disease can be treated with drugs? | ||||
 0% | 212 (7.8) | 168 (7.1) | 121 (6.8) | 0.84 |
 5% | 326 (11.9) | 278 (11.9) | 220 (12.4) | |
 10% | 235 (8.6) | 234 (10) | 161 (9.1) | |
 15% | 168 (6.1) | 151 (6.5) | 109 (6.2) | |
 20% | 183 (6.7) | 171 (7.3) | 123 (7) | |
 50% | 85 (3.1) | 54 (2.3) | 57 (3.2) | |
 I do not know | 1523 (55.7) | 1283 (54.9) | 977 (55.3) | |
12. When is rare disease day celebrated? | ||||
 January 26 | 79 (2.9) | 59 (2.5) | 51 (2.9) | 0.77 |
 February 26 | 489 (17.9) | 414 (17.7) | 328 (18.6) | |
 March 26 | 67 (2.5) | 68 (2.9) | 50 (2.8) | |
 April 26 | 94 (3.4) | 90 (3.8) | 58 (3.3) | |
 I do not know | 2003 (73.3) | 1707 (73) | 1281 (72.5) | |
13. The Iranian non-governmental patient’s organization in the field of rare diseases is: | ||||
 Ghoghnoos | 132 (4.8) | 113 (4.8) | 79 (4.5) | 0.25 |
 Iranian Rare Diseases Foundation | 575 (21) | 529 (22.6) | 366 (20.7) | |
 Zanjireh Omid International Charity | 185 (6.8) | 187 (8) | 109 (6.2) | |
 Rare Disease Protection O | 292 (10.7) | 242 (10.4) | 202 (11.4) | |
 I do not know | 1548 (56.7) | 1267 (54.2) | 1012 (57.2) | |
14. What is the name of the Iranian website providing information about RD and orphan drugs? | ||||
 Radoir | 255 (9.3) | 229 (9.8) | 185 (10.5) | 0.46 |
 NORD | 173 (6.3) | 137 (5.9) | 103 (5.8) | |
 EURORDIS | 59 (2.2) | 38 (1.6) | 39 (2.2) | |
 RARE | 167 (6.1) | 167 (7.1) | 99 (5.6) | |
 Orphanet | 65 (2.4) | 45 (1.9) | 33 (1.3) | |
 Global Genes | 28 (1) | 32 (1.4) | 23 (1.3) | |
 I do not know | 1985 (72.7) | 1690 (72.3) | 1286 (72.7) | |
15. Is Iran a member of the world organization for rare diseases? | ||||
 Yes | 1088 (39.8) | 923 (39.5) | 672 (38) | 0.45 |
 No | 186 (6.8) | 187 (8) | 137 (7.7) | |
 I do not Know | 1458 (53.4) | 1228 (52.5) | 959 (54.2) | |
16. Is there a central register of RD patients in Iran? | ||||
 Yes | 1499 (54.9) | 1253 (53.6) | 999 (56.5) | 0.17 |
 No | 154 (5.6) | 161 (6.6) | 88 (5) | |
 I do not know | 1079 (39.5) | 924 (39.5) | 681 (38.5) | |
17. Are orphan drugs reimbursed in Iran? | ||||
 Yes | 800 (29.3) | 608 (26) | 517 (29.2) | 0.007 |
 Yes, some | 1139 (41.7) | 977 (41.8) | 718 (40.6) | |
 No | 0 (0) | 0 (0) | 0 (0) | |
 I do not know | 793 (29) | 753 (32.2) | 533 (30.1) | |
18. Is there a national plan for rare diseases in Iran? | ||||
 Yes | 795 (29.1) | 681 (29.1) | 561 (31.7) | 0.117 |
 No | 490 (17.9) | 463 (19.8) | 284 (16.1) | |
 I do not know | 1447 (53) | 1194 (51.1) | 923 (52.2) | |