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Table 1 Baseline characteristics of 50 patients

From: Impact of a digital manual for guidance on malignant hyperthermia: patient education

Variables

Test group 1

 N = 17

Test group 2

 N = 16

Control group

N = 17

p

Age (mean/SD)

43.05/12.59

43.18/15.07

38.24/14.25

ns

Female (%)

47.06

50.00

58.82

ns

Higher educational level (%)

47.05

56.25

29.14

ns

No regular MH follow-up (%)

41.12

6.25

17.65

p < 0.019a

(95% CI[− 63.61, − 6.23])

Regular MH follow-up in our service (%)

47.06

81.25

64.71

p value < 0.043a

(95% CI [1.23, 67.15])

Economic classes A/B (%)

64.71

68.75

52.94

ns

MH death in the family (%)

29.41

43.75

23.53

ns

MH crisis in the family (%)

58.82

62.5

58.82

ns

MH related problems (%)

23.53

37.5

35.29

ns

Lifestyle changes (%)

29.4

12.5

35.29

ns

Changed family relationship(%)

11.76

18.75

17.65

ns

Increased number of medical appointment after MH (%)

29.4

6.66

18.75

ns

SF 36 domain 1 (mean/SD) (Functional Capacity)

74.41/28.77

85.66/18.21

83.48/26.50

ns

SF 36 domain 2 (mean/SD) (Physical Aspects)

80.88/34.83

85/31.05

76.66/40.61

ns

SF 36 domain 3 (mean/SD) (Pain)

60.42/32.39

69.94/26.59

80.25/25.32

ns

SF 36 domain 4 (mean/SD) (General Health Status)

70.03/22.82

70.16/30.41

80.6/19.49

ns

SF 36 domain 5 (mean/SD) (Vitality)

53.82/16.53

57.33/17.41

55.93/19.51

ns

SF 36 domain 6 (mean/SD) (Social Aspects)

66.17/31.80

80.83/16.28

75.83/26.92

ns

SF 36 domain 7 (mean/SD) (Emotional Aspects)

56.85/48.25

75.55/38.77

79.99/37.38

ns

SF 36 domain 8 (mean/SD) (Mental Health)

56.94/27.57

73.6/25.56

70.25/24.96

ns

Correct answers:

1st questionnaire (%)

62.72

62.02

55.93

ns

Correct answers:

2nd questionnaire (%)

68.11b

74.13c

56.58d

p < 0.006e

  1. Legend: SD: standard deviation, MH: malignant hyperthermia, SF: Short Form Health Survey, ns: not significant. The chi-square test was used for percentages, and the unpaired t test for mean/SD values. aTest Group 1 (TG1) versus Test Group 2 (TG2); bp: not significant, questionnaire 1 versus 2; cp < 0.002, 95% CI [− 17.69, − 5.12]. questionnaire 1 versus 2; dp: not significant, questionnaire 1 versus 2; eTG1 and TG2 groups versus control group (respectively p < 0.03, 95% CI [− 21.66, − 1.40] and p < 0.001, 95% CI [− 27.41, − 7.66]