Understanding the socioeconomic costs of dystrophic epidermolysis bullosa in Europe: a costing and health-related quality of life study

Table 5 Health-Related Quality of Life characteristics of study participants

	France	Germany	Italy	Spain	United Kingdom	Average
EQ-5D Index Score
Adult patients (n = 46)
Mean	0.528	0.541	0.469	0.490	0.304	0.456
SD	0.285	0.490	0.262	0.317	0.449	0.328
General population
Mean	0.91	0.91	0.93	0.91	0.91	0.914
SD	0.16	0.16	0.15	0.16	0.16	0.158
Main caregivers (n = 46)
Mean	0.720	0.855	0.787	0.726	0.713	0.749
SD	0.243	0.077	0.318	0.296	0.071	0.277
General population
Mean	0.91	0.91	0.91	0.85	0.91	0.898
SD	0.16	0.16	0.16	0.25	0.16	0.178
Visual Analog Scale
Adult patients (n = 46)
Mean	70.0	47.5	64.0	61.7	56.2	61.9
SD	17.3	3.5	16.8	28.6	31.2	23.9
General population
Mean	86.6	86.6	86.8	86.6	86.6	86.6
SD	13.8	13.8	13.8	13.8	13.8	13.8
Main caregivers (n = 46)
Mean	76.7	67.5	75.4	73.9	75.0	74.3
SD	17.6	10.6	16.1	18.5	14.7	16.6
General population
Mean	86.6	86.6	86.6	82.0	86.6	85.7
SD	13.8	13.8	13.8	18.2	13.8	14.7
Adolescent patients (n = 20)
Mean	51.7	60.0	46.4	62.9	57.5	54.8
SD	23.6	0.0	11.8	19.8	31.8	18.2
Zarit scale (n = 49)
Mean	28.0	46.5	32.4	30.7	24.0	31.0
SD	25.7	9.2	13.3	12.3	9.2	13.7
Barthel Index (n = 65)
Mean	94.0	81.7	69.3	77.5	80.0	78.1
SD	14.1	16.1	27.7	19.8	21.7	22.9

ISSN: 1750-1172