Understanding the socioeconomic costs of dystrophic epidermolysis bullosa in Europe: a costing and health-related quality of life study

Table 2 Average annual costs per patient (SD), all patients (n = 91, 2020 €)

	Average		France		Germany		Italy		Spain		United Kingdom
	Mean	SD	Mean	SD	Mean	SD	Mean	SD	Mean	SD	Mean	SD
Drugs	1104	1711	42	103	60	77	3357	1611	356	627	66	76
Tests	216	407	124	109	131	218	74	112	276	421	446	719
Visits	2651	4099	1338	1881	5240	4084	2288	2099	2646	5256	3825	5172
Hospitals	3228	7630	2054	5154	6026	9564	4149	8819	3534	8632	1326	4102
Material	1085	1601	2087	1851	617	1101	614	1309	424	1403	2502	992
HC transport	73	389	13	47	502	581	0	0	122	603	35	135
Direct medical	8357	10,194	5658	7848	12,576	14,221	10,482	10,441	7357	11,608	8201	7169
Social health service	1583	5690	3056	9562	7699	15,398	1895	5072	662	1998	0	0
Professional carer	581	3805	233	872	0	0	568	2007	0	0	2323	8996
Non-HC transport	121	270	204	499	466	604	90	177	95	145	57	96
Main informal carer	29,045	34,656	5561	14,030	40,237	46,502	28,823	34,748	41,756	34,614	21,246	35,264
Other informal carer	10,024	18,998	2907	8440	8598	14,984	13,600	21,696	13,802	22,718	2790	7666
Direct non-medical	41,353	48,079	11,961	32,177	57,000	69,348	44,976	48,225	56,316	49,583	26,415	39,526
Productivity loss	274	1808	1164	4356	0	0	86	439	170	961	66	255
Early retirement	3374	9713	0	0	9829	19,658	939	2651	2980	8081	9864	16,932
Indirect	3649	9784	1164	4356	9829	19,658	1025	2656	3150	8073	9930	16,893
TOTAL	53,359	52,714	18,783	39,323	79,405	72,302	56,483	49,766	66,823	54,753	44,546	48,392

ISSN: 1750-1172