Fig. 4

Agreement scores for caregivers: symptom burden from caregiver perspective, n = 11. Caregivers were asked to rate their agreement with the noted statements based on the impact of Fabry disease on their child. A rating of 1 = completely disagree and 10 = completely agree for the top 7 provided statements; and a rating of 1 = entirely bearable and 10 = completely unbearable for the bottom 2 provided statements. The frequency of reporting of each score 1–10 is noted in the bar chart. The bar chart is colour coded as indicated in the key with red/orange indicating low agreement, and blue/pink indicating high agreement for each statement. Note that high agreement would indicate a negative outcome/outlook in all cases. The mean values for each statement across the respondents are also shown