Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseases

Table 3 PROMIS and stigma scores among adults and children with RDs compared to population norms

Sample	Scale	M	SD
Adult
	Ability to participate in social roles and activities	47.23**	9.62
	Anxiety	55.03**	10.18
	Depression	53.25**	10.10
	Fatigue	59.21**	12.19
	Pain interference	54.78**	11.27
	Physical function	40.16**	9.94
	Sleep disturbance	52.91**	8.77
	Stigma	55.47**	7.53
Pediatric proxy
	Anxiety	53.47**	12.09
	Depression	53.90**	10.90
	Fatigue	56.06**	12.75
	Mobility	33.70**	10.77
	Pain interference	53.60**	11.69
	Peer relationships	44.38**	11.87

ISSN: 1750-1172