Skip to main content

Table 3 PROMIS and stigma scores among adults and children with RDs compared to population norms

From: Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseases

Sample Scale M SD
Adult    
  Ability to participate in social roles and activities 47.23** 9.62
  Anxiety 55.03** 10.18
  Depression 53.25** 10.10
  Fatigue 59.21** 12.19
  Pain interference 54.78** 11.27
  Physical function 40.16** 9.94
  Sleep disturbance 52.91** 8.77
  Stigma 55.47** 7.53
Pediatric proxy    
  Anxiety 53.47** 12.09
  Depression 53.90** 10.90
  Fatigue 56.06** 12.75
  Mobility 33.70** 10.77
  Pain interference 53.60** 11.69
  Peer relationships 44.38** 11.87
  1. **p < .001