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Table 7 Responses to the Carer Experience Scale

From: Health utilities and costs for neuromyelitis optica spectrum disorder

Attribute (levels)

N (%)

Activities outside caring

 

Can do most of the things they want to do

32 (46%)

Can do some of the things they want to do

22 (31%)

Can do a few of the things they want to do

16 (23%)

Support from family and friends

 

A lot

17 (24%)

Some

23 (33%)

A little

30 (43%)

Assistance from organisations and the government

 

A lot

3 (5%)

Some

6 (9%)

A little

55 (86%)

Finding fulfilment from caring

 

Mostly

31 (46%)

Sometimes

27 (40%)

Rarely

9 (13%)

Level of control over aspects of caring

 

Mostly

28 (41%)

Some

29 (43%)

A few

11 (16%)

Getting on with the person you care for

 

Mostly

62 (90%)

Sometimes

7 (10%)

Rarely

0 (0%)