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Table 2 Expressed needs addressed by the 12 participants

From: Common needs in uncommon conditions: a qualitative study to explore the need for care in pediatric patients with rare diseases

 

Frequency (%)

1. Family-focused care

7 (58%)

2. Coping with uncertainty

6 (50%)

3. Empathic communication

4 (33%)

4. Practical support

6 (50%)

5. Information

3 (25%)

6. Psychological support

7 (58%)

7. Interdisciplinary care

6 (50%)

8. Social support

3 (25%)