From: Concordance between the schedule for the evaluation of individual quality of life-direct weighting (SEIQoL-DW) and the EuroQoL-5D (EQ-5D) measures of quality of life outcomes in adults with X-linked hypophosphatemia
Characteristics
Participants n (%)
Gender (% Female)
6 (60)
Age
Mean ± SD
46.1 ± 12.41
Range
28–63
Married/partner
5 (50)
Employed
9 (90)
Offspring with XLH
7 (70)
Family history of XLH
Diagnosed with XLH during childhood
10 (100)