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Fig. 1 | Orphanet Journal of Rare Diseases

Fig. 1

From: Current challenges and opportunities in the care of patients with fibrodysplasia ossificans progressiva (FOP): an international, multi-stakeholder perspective

Fig. 1

Overview of the multi-stakeholder meeting and key challenges and opportunities identified. A multi-stakeholder meeting was convened to give a voice to the FOP community, represented by an international group of clinical experts/researchers from the ICC, patients, patient advocates, and caregivers, representing FOP Friends, Tin Soldiers and Fundación FOP, and members of the IFOPA. Drawing on their collective expertise and/or lived experience, the multi-stakeholder group highlighted the main challenges for patients with FOP and their caregivers, priority areas for change, and opportunities to further improve the care of people living with FOP worldwide. FOP: fibrodysplasia ossificans progressiva; HCP: healthcare professional; ICC: International Clinical Council on FOP; IFOPA: International FOP Association

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172