Table 3 Humanistic outcomes from patients with severe haemophilia B utilising FIX prophylaxis in CHESS II
Humanistic outcome reported by physicians | All patients (n = 75) |
|---|---|
Chronic pain, n (%) | |
No pain | 14 (19) |
Mild | 34 (45) |
Moderate | 23 (31) |
Severe | 4 (5) |
Patient-reported humanistic outcomes | All patients (n = 40) |
|---|---|
Haemophilia impact on daily life, n (%) | 25 (63) |
Adapt treatment/physical activity, n (%) | 8 (20) |
EQ-5D score, mean (SD) | 0.67 (0.21) |