Skip to main content

Table 3 Humanistic outcomes from patients with severe haemophilia B utilising FIX prophylaxis in CHESS II

From: Clinical, humanistic, and economic burden of severe haemophilia B in adults receiving factor IX prophylaxis: findings from the CHESS II real-world burden of illness study in Europe

Humanistic outcome reported by physicians All patients
(n = 75)
Chronic pain, n (%)  
No pain 14 (19)
Mild 34 (45)
Moderate 23 (31)
Severe 4 (5)
Patient-reported humanistic outcomes All patients
(n = 40)
Haemophilia impact on daily life, n (%) 25 (63)
Adapt treatment/physical activity, n (%) 8 (20)
EQ-5D score, mean (SD) 0.67 (0.21)
  1. SD, standard deviation