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Table 8 Barriers in accessing psychosocial care

From: Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

Sub-category

Description

Family circumstances

Parents may face a hectic everyday life and lack financial resources preventing them from accessing psychosocial care

Inadequate coping

Parents do not always realize that external help is needed. Prejudices can further intensify their reservations

Structural barriers

Low capacities as well as cultural and language barriers are frequent