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Table 3 Upper extremity and fine motor activity considered to be the most challenging

From: Mucopolysaccharidosis type VI (Maroteaux-Lamy syndrome): defining and measuring functional impacts in pediatric patients

 

Caregiver

Patient

Pouring a drink from a full pitcher or carton

0

2 (28.5%)

Opening a jar by him or herself

4 (50%)

2 (28.5%)

Lifting or reaching overhead for a heavy item

4 (50%)

3 (42.9%)

Using a key to open a lock

0

0

Write with a pen or pencil

0

0

Total

8

7

  1. Not all participants responded to polling questions because of fatigue, care provision, or other reasons