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Table 3 Upper extremity and fine motor activity considered to be the most challenging

From: Mucopolysaccharidosis type VI (Maroteaux-Lamy syndrome): defining and measuring functional impacts in pediatric patients

  Caregiver Patient
Pouring a drink from a full pitcher or carton 0 2 (28.5%)
Opening a jar by him or herself 4 (50%) 2 (28.5%)
Lifting or reaching overhead for a heavy item 4 (50%) 3 (42.9%)
Using a key to open a lock 0 0
Write with a pen or pencil 0 0
Total 8 7
  1. Not all participants responded to polling questions because of fatigue, care provision, or other reasons