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Table 2 Respondents views on trial design

From: The attitude of patients with progressive ataxias towards clinical trials

 

FRDA all (%)

FRDA trial naive (n = 59) (%)

FRDA one trial (n = 49) (%)

FRDA multiple trials (n = 61) (%)

Inherited CA (%)

Idiopathic CA (%)

Respondents who are trial experienced

63.9

   

12.7

4.5

Respondents very or extremely interested in participating in a future clinical trial

73.9

70.1

67.3

86.7

65.2

59.2

Respondents very or extremely interested in participating in a future clinical trial (drug repurposing)

75.2

74.1

73.4

81.9

53.1

50.9

Respondents willing to participate in phase of trial

      

 Phase 1

57.4

50.8

48.9

60.6

68.3

65.3

 Phase 2

89.5

69.4

87.7

91.8

75.6

85.7

 Phase 3

77.1

69.4

55.9

77

78

40.8

Respondents very or extremely likely to participate in a future trial if they might be given a placebo

59.5

53.3

60.4

69.3

48.9

44.4

Respondents who would be very or extremely more willing to join a trial if an open label extension phase was offered

68.6

59.6

83.6

69.3

47.8

37.7

Respondents who felt it is either very or extremely important to have the results of a trial they participated in relayed back to them

84.5

87.1

87.5

83.3

81.3

78