Table 3 Domain 3 “Role of the caregiver and individuality”
Questions | Answers n (%) |
|---|---|
Do you think you can help improve the symptoms of your family member or partner? | Yes: 47 (50%) |
No: 47 (50%) | |
Would you like to play a more active role in the treatment decisions of your family member or partner? | Yes: 38 (40%) |
No: 56 (60%) | |
Do you think you are helpful for your family member or partner? | Yes: 74 (79%) |
No: 19 (20%) | |
No: opinion 1 (1%) | |
Are you able to find moments of leisure and fun for you? | Never: 4 (4%) |
Rarely: 28 (30%) | |
Sometimes: 33 (35%) | |
Often: 19 (20) | |
Always: 10 (11%) | |
Do you perceive that your family member or partner is asking for more help than needed? | Never: 36 (38%) |
Rarely: 28 (30%) | |
Sometimes: 17 (18%) | |
Often: 11 (12%) | |
Always: 2 (2%) | |
Do you think you have enough time for you? | Never: 2 (2%) |
Rarely: 28 (30%) | |
Sometimes: 25 (27%) | |
Often: 21 (22%) | |
Always: 18 (19%) | |
Do you think that your role should be better taken into account? | Yes: 30 (32%) |
No: 33 (35%) | |
No opinion 31 (33%) | |
Do you think you can freely express your emotions? | Yes: 50 (53%) |
No: 33 (35%) | |
No opinion: 11 (12%) | |
Do you think you need psychological support in order to better help your family member or partner? | Yes: 23 (24%) |
No: 48 (51%) | |
No opinion: 24 (25%) | |
Would you need psychological support for yourself? | Yes: 29 (31%) |
No: 46 (49%) | |
No opinion:19 (20%) | |
How do you generally assess the quality of life of your family member or partner? | 1 – Worst option: 12 (13%) |
2: 14 (15%) | |
3: 43 (46%) | |
4: 24 (25%) | |
5 – Better option: 1 (1%) |