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Table 2 Domain 2 “Quality of life of the caregiver

From: Being a caregiver of a Behçet’s syndrome patient: challenges and perspectives during a complex journey

Questions Answers n (%)
How do you generally assess your quality of life? 1 – Better option: 9 (10%)
  2: 33 (35%)
  3: 39 (42%)
  4: 9 (10%)
  5: Worst option 3 (3%)
Has your life changed since your family member or partner is ill? 1 – My life has changed very little: 12 (13%)
  2: 19 (20%)
  3: 27 (29%)
  4: 21 (22%)
  5 – My life has changed a lot:15 (16%)
Do you think that you have lost control of your life since your family member or partner was ill? Yes: 25 (27%)
  No: 69 (73%)
Do you think your attention is completely focused on the illness of your family member or partner? Yes: 33 (35%)
  No: 61 (65%)
Has your mood changed since your family member or partner was diagnosed with BS? 1 – My mood changed very little: 24 (25%)
  2: 22 (23%)
  3: 32 (34%)
  4: 14 (15%)
  5: My mood has changed a lot 3 (3%)
Has your relationship with your family member or partner changed due to the illness? 1 – The relationship with my family member has not changed at all: 32 (34%)
  2: 18 (19%)
  3: 26 (28%)
  4: 13 (14%)
  5: The relationship with my family member has changed a lot 5 (5%)
Are you afraid of your future or of the future of your family member or partner? Never: 7 (7%)
  Rarely: 9 (10%)
  Sometimes: 27 (29%)
  Often: 30 (32%)
  Always: 21 (22%)