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Table 2 Domain 2 “Quality of life of the caregiver

From: Being a caregiver of a Behçet’s syndrome patient: challenges and perspectives during a complex journey

Questions

Answers n (%)

How do you generally assess your quality of life?

1 – Better option: 9 (10%)

 

2: 33 (35%)

 

3: 39 (42%)

 

4: 9 (10%)

 

5: Worst option 3 (3%)

Has your life changed since your family member or partner is ill?

1 – My life has changed very little: 12 (13%)

 

2: 19 (20%)

 

3: 27 (29%)

 

4: 21 (22%)

 

5 – My life has changed a lot:15 (16%)

Do you think that you have lost control of your life since your family member or partner was ill?

Yes: 25 (27%)

 

No: 69 (73%)

Do you think your attention is completely focused on the illness of your family member or partner?

Yes: 33 (35%)

 

No: 61 (65%)

Has your mood changed since your family member or partner was diagnosed with BS?

1 – My mood changed very little: 24 (25%)

 

2: 22 (23%)

 

3: 32 (34%)

 

4: 14 (15%)

 

5: My mood has changed a lot 3 (3%)

Has your relationship with your family member or partner changed due to the illness?

1 – The relationship with my family member has not changed at all: 32 (34%)

 

2: 18 (19%)

 

3: 26 (28%)

 

4: 13 (14%)

 

5: The relationship with my family member has changed a lot 5 (5%)

Are you afraid of your future or of the future of your family member or partner?

Never: 7 (7%)

 

Rarely: 9 (10%)

 

Sometimes: 27 (29%)

 

Often: 30 (32%)

 

Always: 21 (22%)