Skip to main content
Fig. 3 | Orphanet Journal of Rare Diseases

Fig. 3

From: The IDeaS initiative: pilot study to assess the impact of rare diseases on patients and healthcare systems

Fig. 3

Eversana RD versus control total costs of 13 RD over 15-year time period. Total costs within the 15-year time period 2005–2020 calculated from the Eversana HCS database for 13 representative RD. Costs were calculated by taking the average PPPY cost by disease (Fig. 2a) and multiplying by the number of patients with the disease (Table 3). SCD sickle cell disease, MD muscular dystrophy, CF cystic fibrosis, HHT hereditary hemorrhagic teleangiectasia, BD Batten disease, LGS Lennox Gastaut syndrome, FSGS focal segmental glomerulosclerosis, EOE eosinophilic esophagitis, OI osteogenesis imperfecta, MNGIE mitochondrial neurogastrointestinal encephalopathy, Pheo pheochromocytoma, TA Takayasu’s arteritis

Back to article page