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Table 2 Patient baseline demographics and clinical history

From: The patient experience of Wilson disease: a conceptual model based on qualitative research

Characteristic N
Total sample* 11
Age at time of study
 Under 18 0
 18–29 4
 30–39 1
 40–49 4
 50–59 1
 60–69 1
 70+ 0
Gender
 Male 1
 Female 10
Educational status, highest level attained
 High school 4
 College 5
 Graduate degree 2
Geography
 United States 8
 United Kingdom 1
 Germany 2
Years since diagnosis  
 0–5 2
 6–10 2
 11–20 5
 20+ 2
Treatment status
 Currently receiving treatment (prescription or non-prescription) 11
 Not receiving treatment 0
Treatment (ever received)  
 Trientine 7
 Penicillamine 4
 Zinc 6
 Low copper diet 11
 Other** 3
  1. *10/11 confirmation of diagnosis forms received
  2. **Occupational and physical therapy, supplements