From: The patient experience of Wilson disease: a conceptual model based on qualitative research
Characteristic | N |
---|---|
Total sample* | 11 |
Age at time of study | |
Under 18 | 0 |
18–29 | 4 |
30–39 | 1 |
40–49 | 4 |
50–59 | 1 |
60–69 | 1 |
70+ | 0 |
Gender | |
Male | 1 |
Female | 10 |
Educational status, highest level attained | |
High school | 4 |
College | 5 |
Graduate degree | 2 |
Geography | |
United States | 8 |
United Kingdom | 1 |
Germany | 2 |
Years since diagnosis | |
0–5 | 2 |
6–10 | 2 |
11–20 | 5 |
20+ | 2 |
Treatment status | |
Currently receiving treatment (prescription or non-prescription) | 11 |
Not receiving treatment | 0 |
Treatment (ever received) | |
Trientine | 7 |
Penicillamine | 4 |
Zinc | 6 |
Low copper diet | 11 |
Other** | 3 |