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Table 2 Patient baseline demographics and clinical history

From: The patient experience of Wilson disease: a conceptual model based on qualitative research

Characteristic

N

Total sample*

11

Age at time of study

 Under 18

0

 18–29

4

 30–39

1

 40–49

4

 50–59

1

 60–69

1

 70+

0

Gender

 Male

1

 Female

10

Educational status, highest level attained

 High school

4

 College

5

 Graduate degree

2

Geography

 United States

8

 United Kingdom

1

 Germany

2

Years since diagnosis

 

 0–5

2

 6–10

2

 11–20

5

 20+

2

Treatment status

 Currently receiving treatment (prescription or non-prescription)

11

 Not receiving treatment

0

Treatment (ever received)

 

 Trientine

7

 Penicillamine

4

 Zinc

6

 Low copper diet

11

 Other**

3

  1. *10/11 confirmation of diagnosis forms received
  2. **Occupational and physical therapy, supplements