Table 2 Perceived impact of GSD I on different aspects of adult daily life

Physical performance and fitness

5/34 (14.7%)

14/34 (41.2%)

15/34 (44.1%)

0/34 (0%)

Free time activities and friendships

21/34 (61.8%)

10/34 (29.4%)

2/34 (5.9%)

1/34 (2.9%)

Partnership

15/28 (53.6%)

10/28 (35.7%)

3/28 (10.7%)

0/28 (0%)

Financial burden (treatment costs, impact on school and professional education, career choices, choice of profession, professional life)

7/32 (21.9%)

15/32 (46.9%)

6/32 (18.8%)

4/32 (12.5%)

Sick leave at work

17/31 (54.8%)

8/31 (25.8%)

4/31 (12.9%)

2/31 (6.5%)

Intellectual performance

21/33 (63.6%)

10/33 (30.3%)

1/33 (3.0%)

1/33 (3.0%)

Emotional stability

17/33 (51.5%)

10/33 (30.3%)

4/33 (12.1%)

2/33 (6.1%)