Skip to main content

Table 2 Perceived impact of GSD I on different aspects of adult daily life

From: Impact of glycogen storage disease type I on adult daily life: a survey

  Perceived impact
Low Moderate High Very high
Physical performance and fitness 5/34 (14.7%) 14/34 (41.2%) 15/34 (44.1%) 0/34 (0%)
Free time activities and friendships 21/34 (61.8%) 10/34 (29.4%) 2/34 (5.9%) 1/34 (2.9%)
Partnership 15/28 (53.6%) 10/28 (35.7%) 3/28 (10.7%) 0/28 (0%)
Financial burden (treatment costs, impact on school and professional education, career choices, choice of profession, professional life) 7/32 (21.9%) 15/32 (46.9%) 6/32 (18.8%) 4/32 (12.5%)
Sick leave at work 17/31 (54.8%) 8/31 (25.8%) 4/31 (12.9%) 2/31 (6.5%)
Intellectual performance 21/33 (63.6%) 10/33 (30.3%) 1/33 (3.0%) 1/33 (3.0%)
Emotional stability 17/33 (51.5%) 10/33 (30.3%) 4/33 (12.1%) 2/33 (6.1%)