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Table 1 Sociodemographic and disease characteristics of the respondent

From: Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender

  Participants (n = 114 families)
Characteristics M SD
Patient’s age (years) 4.2 3.33
Mother’s age (years) 37.4 5.98
Father’s age (years) 40.3 6.15
Number of surgeries due to disease 4.4 4.21
Time since first surgery (years) 2.6 2.51
Time since initial diagnosis (years) 3.8 3.04
Parents n %
Gender 109/101 95.6/88.6
Marital status (mothers/fathers)   
 Married/living together 98/92 89.9/91.1
 Single 9/7 8.3/6.9
 Divorced 2/2 1.8/2.0
 Not stated 0.0/0.0 0.0/0.0
Education (mothers/fathers)   
 Lower-middle education 32/42 29.4/41.6
 Higher education 69/54 63.3/53.5
 Not stated 8/5 7.3/5.0
Employment1 (mothers/ fathers)   
 Fully employed 11/94 10.1/93.1
 Partly employed 54/4 49.5/4.0
 No employment 42/3 38.5/3.0
 Not stated 2/0 1.8/0
Social support2 (mothers/ fathers)   
 Poor 23/13 21.1/12.9
 Moderate 49/61 45.0/60.4
 Strong 37/27 33.9/26.7
Patients n %
Patient's gender   
 Female 44 38.6
 Male 70 61.4
Patient receives level of care3   
 Yes 43 37.7
 No 71 62.3
Patient rare disease   
 Anorectal malformation 30 26.3
 Biliary atresia 14 12.3
 Congenital diaphragmatic hernia 14 12.3
 Esophageal Atresia 27 23.7
 Hirschsprung’s disease 29 25.4
  1. 1Refers to the last 12 months. 2Social support is measured with the Oslo-Social Support Scale [23] and operationalized into three broad categories referring to [31]. 3Referes to the decision for the classification in the care insurance according to the German long-term care insurance