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Table 1 Sociodemographic and disease characteristics of the respondent

From: Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender

 

Participants (n = 114 families)

Characteristics

M

SD

Patient’s age (years)

4.2

3.33

Mother’s age (years)

37.4

5.98

Father’s age (years)

40.3

6.15

Number of surgeries due to disease

4.4

4.21

Time since first surgery (years)

2.6

2.51

Time since initial diagnosis (years)

3.8

3.04

Parents

n

%

Gender

109/101

95.6/88.6

Marital status (mothers/fathers)

  

 Married/living together

98/92

89.9/91.1

 Single

9/7

8.3/6.9

 Divorced

2/2

1.8/2.0

 Not stated

0.0/0.0

0.0/0.0

Education (mothers/fathers)

  

 Lower-middle education

32/42

29.4/41.6

 Higher education

69/54

63.3/53.5

 Not stated

8/5

7.3/5.0

Employment1 (mothers/ fathers)

  

 Fully employed

11/94

10.1/93.1

 Partly employed

54/4

49.5/4.0

 No employment

42/3

38.5/3.0

 Not stated

2/0

1.8/0

Social support2 (mothers/ fathers)

  

 Poor

23/13

21.1/12.9

 Moderate

49/61

45.0/60.4

 Strong

37/27

33.9/26.7

Patients

n

%

Patient's gender

  

 Female

44

38.6

 Male

70

61.4

Patient receives level of care3

  

 Yes

43

37.7

 No

71

62.3

Patient rare disease

  

 Anorectal malformation

30

26.3

 Biliary atresia

14

12.3

 Congenital diaphragmatic hernia

14

12.3

 Esophageal Atresia

27

23.7

 Hirschsprung’s disease

29

25.4

  1. 1Refers to the last 12 months. 2Social support is measured with the Oslo-Social Support Scale [23] and operationalized into three broad categories referring to [31]. 3Referes to the decision for the classification in the care insurance according to the German long-term care insurance