From: Economic burden and health related quality of life of ultra-rare Gaucher disease in China
Items | Sample (n) | Proportion (%) |
---|---|---|
Sex | Â | Â |
 Male | 25 | 51.0 |
 Female | 24 | 49.0 |
Age group (mean age at survey) in years | Â | Â |
 0–4 | 19 | 38.9 |
 5–7 | 5 | 10.2 |
 8–12 | 12 | 24.5 |
 13–14 | 2 | 4.1 |
 ≥ 15 | 11 | 22.5 |
Age at onset, years | Â | Â |
 Mean ± SD | 9.3 ± 10.69 |  |
 Max | 44 |  |
 Min | 1 |  |
Disease course from symptom onset, days | Â | Â |
 Mean ± SD | 3.5 ± 3.1 |  |
 Max | 12.1 |  |
 Min | 0.3 |  |
 Median | 2.0 |  |
Types of Gaucher disease (GD) | Â | Â |
 Type I | 20 | 40.8 |
 Type II | 5 | 10.2 |
 Type III | 4 | 8.2 |
 Not clear | 20 | 40.8 |
Number of caregivers | Â | Â |
 1 | 28 | 57.1 |
 ≥ 2 | 21 | 42.9 |