Table 2 Selection of illustrative quotes from rare cancer patients
Topic | Quotes |
|---|---|
Experiences regarding diagnosis and treatment in multiple hospitals | “Bad communication from hospital X to hospital Y. Information was regularly missing, which almost led to crucial mistakes regarding treatment several times.” |
Experiences regarding hospital choice | “It is difficult to find out if another hospital would be better. You get into a crazy merry-go-around in the hospital where the diagnosis is made. Then you only want one thing, and that is to start treatment as soon as possible.” |
Experiences regarding medical expertise and second opinions | “The pathologist of hospital X asked for a second opinion himself, because of the rarity of angiosarcomas and thus I was immediately referred to hospital Y.” |
Experiences regarding travel distance to care | “If your life is at stake and you want maximum care, travel time is a secondary problem to be solved.” |