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Table 1 Demographics

From: Microcephalic osteodysplastic primordial dwarfism type II is associated with global vascular disease

  

% (n)

Mean age +/− SD (years)

Median age (min–max) (years)

Consented

Registry

100% (47)

15.96 +/− 9.5

14 (3–41)

Survey

81% (38)

16.03 +/− 10.1

14 (3–41)

 Completed

51% (24)

19.7 +/− 9.8

18.5 (3–41)

 Partially

13% (6)

14.3 +/− 9.9

12 (5–28)

 Not completed

17% (8)

6.3 +/− 3.8

5 (3–14)

Sex

Female

47% (22)

16.1 +/− 10.0

13.5 (3–37)

Male

53% (25)

15.8 +/− 9.1

14 (3–41)

Status

Living

Current age

72% (34)

14.1 +/− 8.9

13 (3–37)

Deceased

At age

28% (13)

20.8 +/− 9.6

22 (7–41)

Race

 

n

  

 White

 

35

  

 Asian

 

5

  

 Black

 

2

  

 Hispanic

 

2

  

 Aboriginal

 

1

  

 Native Hawaiian

 

1

  

Unknown

 

1

  

Country

 USA

 

32

  

 UK

 

5

  

 Australia

 

2

  

 Canada

 

2

  

 Ireland

 

2

  

 Netherlands

 

2

  

 Guatemala

 

1

  

 New Zealand

 

1