Table 2 Caregiver characteristics: self-reported
Characteristics | |
|---|---|
Number of caregivers interviewed | |
Overall, n | 21 |
Face-to-face interview, n (%) | 19 (90.5) |
Telephone interview, n (%) | 2 (9.5) |
Sex, n (%) | |
Female | 17 (81.0) |
Male | 4 (19.0) |
Mean age, years (range) | 41.1 (26, 58) |
Country of residence, n (%) | |
UK | 4 (19.0) |
USA | 17 (81.0) |
Ethnic background, n (%) | |
Asian | 2 (9.5) |
Hispanic or Latino | 2 (9.5) |
Other, Greek European | 1 (4.8) |
White | 15 (71.4) |
Other | 1 (4.8) |
Highest level of education, n (%) | |
High school/secondary school | 2 (9.5) |
Some college or university | 5 (23.8) |
College or university degree | 7 (33.3) |
Post graduate qualification | 6 (28.6) |
Missing | 1 (4.8) |
Main status, n (%) | |
Employed full time | 11 (52.4) |
Employed part time | 2 (9.5) |
Other, disability | 1 (4.8) |
Retired | 1 (4.8) |
Stay at home | 4 (19.0) |
Student | 2 (9.5) |
Number of children that the caregiver was primary caregiving for (range) | 0–7 |
Number of children ever diagnosed with HLH, n (%) | |
One | 19 (90.5) |
Two | 1 (4.8) |
Three | 1 (4.8) |
Relationship of caregiver to child/children with HLH diagnosis, n (%) | |
Father | 4 (19.0) |
Mother | 16 (76.2) |
Sister | 1 (4.8) |
Number of children deceased attributed to HLH, n (%) | |
None | 18 (85.7) |
One | 3 (14.3) |
Physical or mental health issues, n (%) | |
No | 11 (52.4) |
Yes | 10 (47.6) |