Table 5 Health economics prior to baseline, N (%)

Any referral/specialists visits prior to diagnosis (n = 138)

135 (97.8)

 ≥ 5

33 (23.9)

24 months prior to baseline

 ≥ 5 GP visits (n = 132)

21 (15.9)

 ≥ 5 specialists visits (n = 136)

76 (55.9)

 ≥ 10 PT sessions (n = 141)

36 (25.5)

 Rehabilitation (n = 140)

26 (18.6)

 Duration [days], median (range)

15.0 (1.0–120.0)

Hospitalization related to TGCT

151 (91.0)

 ≥ 5 hospitalizations

15 (9.9)

 Duration [days], median (range)

3.0 (1.0–184.0)

Changed employment status from full-employment due to TGCT (n = 146)

17 (11.6)

 Part-time employed

5 (3.4)

 Unemployed

9 (6.2)

 Retired

3 (2.1)

Work missed in 24 months prior to baseline (n = 116)

66 (56.9)

 If work missed, number of [days],

 Median (range)

25.0 (1.0–75.0)

Domestic help required at baseline

(n = 162)

26 (16.0)