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Table 1 Demographic and clinical characteristics of patients included in the TOPP study at baseline

From: The diffuse-type tenosynovial giant cell tumor (dt-TGCT) patient journey: a prospective multicenter study

Features

n = 166 (%)

Mean age [years] at diagnosis ± SD

39.0 ± 14.42

Mean age [years] at baseline ± SD

44.0 ± 14.12

Female, n (%)

102 (61.4)

Level of education (n = 143)

 

 University (bachelor or higher)

63 (44.1)

Time [months] since diagnosis, median (Q1, Q3)

29.7 (9.5–80.0)

Localization, n (%)

 

 Knee

112 (68.5)

 Ankle

19 (11.4)

 Hip

12 (7.2)

 Shoulder

8 (4.8)

 Foot

5 (3.0)

 Elbow

3 (1.8)

 Wrist

3 (1.8)

 Hand

3 (1.8)

 Temporomandibular

1 (0.6)

Therapy prior to baseline, n (%)

139 (83.7)

Recurrent disease, n (%)

71 (42.8)

 1 recurrence

37 (52.9)

 2 recurrence

15 (21.4)

 3 recurrence

18 (25.7)

  1. Q1 quarter 1, Q3 quarter 3, SD standard deviation, TGCT tenosynovial giant cell tumor, TOPP TGCT Observation Platform Project