Skip to main content

Table 13 End of life care for CLN2 disease, statements and consensus data

From: Guidelines on the diagnosis, clinical assessments, treatment and management for CLN2 disease patients

Statement Responders Evidence level Consensus
Important considerations as nearing ‘end-of-life care’ patient comfort, including reduction of pain and anxiety as well as support for continued activities and interactions, and support for family and caregivers 41 C 98
Palliative care services are important, and a plan should be recorded and offered at the end of life, if or when available 39 D 96