Table 13 End of life care for CLN2 disease, statements and consensus data
Statement | Responders | Evidence level | Consensus |
|---|---|---|---|
Important considerations as nearing ‘end-of-life care’ patient comfort, including reduction of pain and anxiety as well as support for continued activities and interactions, and support for family and caregivers | 41 | C | 98 |
Palliative care services are important, and a plan should be recorded and offered at the end of life, if or when available | 39 | D | 96 |