Table 6 Dressing- and medical-related expenses per patient per year

Dressing costs

Jeon [59]

South Korea

RDEB

13

$4296

2016 USD^c

Dressings, fixing materials, topical agents and medicines used during changes

Patient survey^b

Mellerio [62]

United Kingdom

RDEB

40

$9049

2016 GBP^c

Cost of dressing

Patient and caregiver survey^b

RDEB, severe

17

$17,151

Cost of dressings

RDEB

11

$15,293

Cost of hours spent dressing wounds

Grocott [76], single-center, cross-sectional survey^b

United Kingdom

RDEB, with wounds difficult to manage with conventional dressings

11

$28,727

2012 GBP

Dressing materials, costs estimated via monthly dressing orders

Kirkorkian [77],

United States

RDEB, neonate

NA

$4,000–$47,000

2014 USD

Cost of wound care products obtained from Amazon.com (August 2012 prices) based on body-size

Cost exercise model

RDEB, infant

$8,000–$99,000

RDEB, 10 year old

$20,000–$245,000

Flannery [78], Patient survey^b

Ireland

EB

5 (4 RDEB)

$32,256

2020 EUR^c

Median wound and drugs cost

Medical, non-dressing-related costs

Jeon [59], Patient survey^b

South Korea

RDEB

13

$3096

2016 USD

All RDEB expenses excluding dressing costs

Mellerio [62], Patient and caregiver survey^b

United Kingdom

RDEB

10

$1249^d

2016 GBP^c

Cost per hospital stay, assuming ₤212 per day

Flannery [78], Patient survey^b

Ireland

EB

5 (4 RDEB)

$84,534

2020 EUR^c

Median total medical costs

$33,679

Median overnight hospital costs, assuming €813 per night

$2890

Median day clinic costs, assuming €407 per visit

$1304

Median other primary care costs, including GP visits, physiotherapy, occupational therapy, public health nurse visits