| Frequency (%) |
---|---|
(a) Description of socio-demographic variables (N = 574) | |
Region, n (%) | |
Central | 160 (27.9) |
Southern | 80 (13.9) |
Northern | 72 (12.5) |
East Coast | 156 (27.2) |
East Malaysia | 106 (18.5) |
Female patient, n (%) | 317 (55.2) |
Age | |
Mean (SD) | 17.3 (10.6) |
Median (IQR) | 15 (15) |
Age group of patient, n (%) | |
Less than 18Â years old | 347 (60.5) |
18Â years old and above | 227 (39.5) |
Weight (kg) | |
Mean (SD) | 36.8 (16.1) |
Ethnic, n (%) | |
Malay | 391 (68.1) |
Chinese | 95 (16.6) |
Indian | 3 (0.5) |
KadazanDusun | 59 (10.3) |
Bajau | 9 (1.6) |
Other-Sabahan native | 2 (0.3) |
Others | 15 (2.6) |
Working/schooling status at enrolment, n (%) | |
Less than 18 years old (n = 347) |  |
Not schooling | 35 (10.1) |
Student | 310 (89.3) |
Not recorded | 2 (0.6) |
18 years old and above (n = 227) |  |
Student | 36 (15.9) |
Adult—working | 130 (57.3) |
Adult—not working | 61 (26.9) |
(b) Description of clinical characteristic | Â |
Age at First transfusion as TDT | |
Mode (Min, Max) | 1 (0, 50) |
Years of transfusion | |
Mean, SD | 13.4 (8.9) |
Presence of IOL complications, n (%) | |
Yes | 255 (44.6) |
No | 319 (55.4) |
Types of current ICT, n (%) | |
Desferrioxamine(DFO) | 67 (11.7) |
Deferrasirox (DFX) | 238 (41.5) |
Deferiprone (DFP) | 70 (12.2) |
DFO + DFP | 154 (26.8) |
DFO + DFX | 32 (5.6) |
DFX + DFP | 12 (2.1) |
DFO + DFP + DFX | 1 (0.2) |