Table 2 Impact of demographic information on rare disease awareness and perspectives
From: Rare disease awareness and perspectives of physicians in China: a questionnaire-based study
Rare disease awareness | No factors with statistical significance |
|---|---|
Does your hospital pay enough attention to rare disease patients? | Career length (AIC = 289.4388, p = 0.0009 |
The longer their career length was, the more likely physicians had a positive response | |
How many rare disease patients have you met? | Gender (AIC = 491.425, p = 0.02) |
Compared to ‘ > 10’, female physicians were more likely to respond ‘none’ | |
Do you support special legislation for rare diseases? | No factors with statistical significance |
Do you support special legislation of orphan drugs? | No factors with statistical significance |
Perspectives on medical insurance | No factors with statistical significance |
Availability of orphan drugs | No factors with statistical significance |
Do you need rare disease information? | No factors with statistical significance |
Affordability of orphan drugs | Hospital (AIC = 570.3079, p = 0.017) |
Physicians from Tertiary A hospitals were more likely to rate the affordability of orphan drugs high | |
Perspectives on newborn screening (AIC = 442.2492, p < 0.05) | Gender (AIC = 442.2492, p < 0.05) |
Female physicians were less likely to believe newborn screening to be important | |
Does your previous education and training provide sufficient information about rare diseases? | Career length (AIC = 612.4972, p < 0.05) |
The longer the career length was, the less likely they believe previous education to be useful | |
Do you only want information about rare diseases that can be possibly cured? | Career length (AIC = 290.00995, p < 0.01) |
Physicians with less than 5 years or over 30 years of experience were more likely to respond positively, while physicians with 5–30 years of experience had no preference |