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Table 3 Humanistic outcomes

From: Clinical, humanistic, and economic burden of severe hemophilia B in the United States: Results from the CHESS US and CHESS US+ population surveys

 

CHESS US+

n = 57

EQ_5D_5L utility value

 Mean (SD)

0.74 (0.26)

Chronic pain

 No pain

9 (15.8%)

 Pain level 1–5

32 (56.1%)

 Pain level 6–10

16 (28.1%)

Daily life compromised by hemophilia

 Yes

32 (56.1%)

 No

25 (43.9%)

Adapt treatment regimen (physical activity)

 Yes

52 (91.2%)

 No

5 (8.8%)