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Fig. 1 | Orphanet Journal of Rare Diseases

Fig. 1

From: Experience of health care at a reference centre as reported by patients and parents of children with rare conditions

Fig. 1

taken from initial concern to obtaining a formal diagnosis, n = 114. c Age at formal diagnosis. The age at formal diagnosis was calculated following the responses to age of first concern and time taken to reach a diagnosis, n = 114

a Age at first concern. Participants who had a formal diagnosis were asked to report at which age they first developed concerns, n = 114. b Length of time taken to reach diagnosis from initial concern. Participants were asked to report the length of time

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172