Table 4 Challenges in creating a Patient’s Association
Finding patients |
Membership recruitment |
Lack of interest in keeping affiliated |
Scarce support from health system |
Lack of reference units |
Lack of funding |
Finding patients |
Membership recruitment |
Lack of interest in keeping affiliated |
Scarce support from health system |
Lack of reference units |
Lack of funding |
Orphanet Journal of Rare Diseases