What is the most difficult aspect of balancing your SMA/SMA symptoms with everyday life?
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Age
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Motor function
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Adolescents n = 44% (95% CI)
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Young Adults n = 41% (95% CI)
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p value
|
Non independent sitter n = 31% (95% CI)
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Sitter/non-independent walker n = 40% (95% CI)
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Independent walker n = 14% (95% CI)
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p value
|
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Accessibility
|
15.91 (6.64–30.07)
|
14.63 (5.57–29.17)
|
0.87
|
0
|
20 (9.05–35.65)
|
35.71 (12.76–64.86)
|
0.002*
|
Advocating
|
2.27 (0.06–12.02)
|
2.44 (0.06–12.9)
|
1
|
3.23 (0.08–16.70)
|
0
|
7.14 (0.18–33.9)
|
0.147
|
Balance
|
6.82 (1.43–18.66)
|
7.32 (1.54–19.92)
|
1
|
3.23 (0.08–16.70)
|
12.5 (4.2–26.8)
|
0
|
0.256
|
Dependence
|
22.73 (11.47–37.84)
|
24.39 (12.36–40.30)
|
0.857
|
16.13 (5.45–33.73)
|
37.5 (22.73–54.20)
|
0
|
0.008^
|
Everyday
|
9.09 (2.53–21.67)
|
9.76 (2.72–23.13)
|
1
|
9.68 (2.04–25.75)
|
5 (0.61–16.92)
|
21.43 (4.66–50.80)
|
0.151
|
Fatigue
|
6.82 (1.43–18.66)
|
17.07 (7.15–32.06)
|
0.186
|
19.35 (7.45–37.47)
|
7.5 (1.57–20.39)
|
7.14 (0.18–33.9)
|
0.258
|
Finding care
|
0
|
9.76 (2.72–23.13)
|
0.05*
|
9.68 (2.04–25.75)
|
2.5 (0.06–13.16)
|
0
|
0.374
|
Mental health
|
6.82 (1.43–18.66)
|
0
|
0.242
|
6.45 (0.79–21.42)
|
0
|
7.14 (0.18–33.9)
|
0.181
|
other
|
6.82 (1.43–18.66)
|
0
|
0.242
|
3.23 (0.08–16.7)
|
2.5 (0.06–13.16)
|
7.14 (0.18–33.9)
|
0.567
|
Pain
|
9.09 (2.53–21.67)
|
7.32 (1.54–19.92)
|
1
|
12.9 (3.63–29.83)
|
7.5 (1.57–20.39)
|
0
|
0.451
|
Social
|
13.64 (5.17–27.35)
|
7.32 (1.54–19.92)
|
0.486
|
16.13 (5.45–33.73)
|
5 (0.61–16.92)
|
14.29 (1.78–42.81)
|
0.25
|
- Dependence and the lack of independence was the highest-cited difficult aspect, incurring 20 total respondents. Percentages are out of total number of respondents (n = 85). The table values represent statistically significant differences in responses between either the age groups (2 bins) or between the motor function groups (3 bins) using a chi square or Fisher’s exact test. Highlighted findings were found to have statistical significance; asterisk(*) indicates significance by Fisher’s exact test and carrots(^) indicates significance by Chi2 test