Table 1 Description of the sample of subjects who answered to PREM
Sample age (mean, SD) | 38 (13.6) |
Age paediatric subsample (mean, SD) | 10.1 (3.4) |
Age adults subsample (mean, SD) | 41.4 (10.1) |
Sex | |
Men (N, %) | 227 (87.0) |
Women (N, %) | 34 (13.0) |
Diagnosis | |
The diagnosis is known (N, %) | 239 (91.6) |
Addison's disease (N, %) | 24 (10) |
Antiphospholipid syndrome (N, %) | 9 (3.8) |
Ehlers-Danlos syndrome (N, %) | 8 (3.3) |
Scleroderma (N, %) | 4 (1.7) |
The diagnosis is not yet known (N, %) | 22 (8.4) |
Time since the diagnosis is known (mean, SD) | 7.8 (8.0) |
Where they are usually receiving health care? | |
Hospital (N, %) | 181 (69.3) |
Health center (N, %) | 80 (30.7) |
Number of drugs they are taking regularly, paediatric subsample (media, SD) | 2.7 (2.4) |
Number of times they have been admitted to hospital in the last year, paediatric subsample (media, SD) | 0.9 (1.6) |
Number of drugs they are taking regularly, adults subsample (media, SD) | 4.5 (3.3) |
Number of times they have been admitted to hospital in the last year, adults subsample (media, SD) | 1.0 (2.3) |