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Table 1 Demographic variables and disease/ health related characteristics

From: Psychological functioning in children suspected for mitochondrial disease: the need for care

DemographicsChildren N (%, Total)Family/ general informationMothersFathers
Mean age8.4 years (0–17) 38.7 (25–51)41.0 (24–54)
Boys67 (54.9%, 122)   
Child living at home115 (100%)   
School/childcare
Non9 (7.8%, 115)   
Regular85 (73.9%)   
Special21 (18.3%)   
Nationality Dutch  107 (97.3%, 110)94 (92.2%, 102)
Level of education:
Elementary school  0 (0%, 108)3 (2.9%, 105)
Secondary education  13 (12.0%)8 (7.6%)
Lower vocational education  7 (6.5%)9 (8.6%)
Intermediate vocational education  56 (51.9%)52 (49.5%)
Higher vocational education  26 (24.1%)19 (18.1%)
University  6 (5.6%)14 (13.3%)
Having a job  72 (65.5%, 110)95 (91.3%, 104)
Marital status:
Married 87 (76.3%, 114)  
Living together 18 (15.8%)  
Single parent 6 (5.3%)  
Divorced 3 (2.6%)  
Disease/ health related characteristics
Duration health complaints
< 1 year11 (9.8%, 112)   
1–2 years18 (16.1%)   
> 3 years83 (74.1%)   
Treatment in other care instances87 (75.0%, 116)   
Involvement of other specialists in total85 (74.6%, 114)   
Speech therapy32 (28.1%, 114)   
Physiotherapy63 (55.3%, 114)   
Psychologist19 (16.7%, 114)   
Remedial educationalist13 (11.4%, 114)   
Social worker12 (10.5%, 114)   
Dietician32 (28.1%, 114)   
Occupational therapist16 (14.0%, 114)   
Care leave  59 (56.7%, 104)65 (67.7%, 96)
Health problems: In family 73 (63.5%, 115)  
Mother/Father  46 (43.8%, 105)20 (19.8%, 101)
Brothers/sisters 43 (41.3%, 104)  
Other concerns in general  22 (20.8%, 106)11 (12.9%, 85)
Diagnoses
No diagnosis67 (54.9%)   
Mitochondrial disease7 (5.7%)   
Non-conclusive abnormalities32 (26.2%)   
Confirmed other diagnosis15 (12.3%)   
No diagnosis up to date1 (0.8%)