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Table 1 Policy Categories for Analysis

From: A civil society view of rare disease public policy in six Latin American countries

Policy CategoryDescription
National LawsExistence of a national law specific to rare diseases
National RegulationsRegulations published (or drafted) by the government to implement the national law
Health System IncorporationInclusion of rare diseases and treatments in health system financing and reimbursement programs
Care DeliveryExtent to which care models are utilized or proposed, such as rare disease centers of excellence or reference centers
Patient EngagementLevel of engagement by governments of patient advocates and their organizations