Table 1 Policy Categories for Analysis
From: A civil society view of rare disease public policy in six Latin American countries
Policy Category | Description |
|---|---|
National Laws | Existence of a national law specific to rare diseases |
National Regulations | Regulations published (or drafted) by the government to implement the national law |
Health System Incorporation | Inclusion of rare diseases and treatments in health system financing and reimbursement programs |
Care Delivery | Extent to which care models are utilized or proposed, such as rare disease centers of excellence or reference centers |
Patient Engagement | Level of engagement by governments of patient advocates and their organizations |